After his ALS diagnosis in 2017, Larry knew that he wanted to raise awareness about the disease and help raise funds for ALS research. During the summer of 2019, he took his family around the country in an RV to meet with other people affected by ALS and share their stories on social media – all while visiting every Major League Baseball park. The journey was called the Iron Horse Tour as a tribute to Lou Gehrig.
These stories not only raised awareness about ALS, but were also inspiring to thousands of people. They showed how others could overcome a devastating disease by not giving up, facing the situation with a positive attitude, and having hope.
Larry has been featured in several television interviews and articles and remains dedicated to making an impact against ALS by continuing his role as a patient advocate, and by fundraising to help support research and patient care. He was part of the “Lou Gehrig Committee” which helped create an official Lou Gehrig Day that is celebrated each season by Major League Baseball. Larry also serves on the National Board of Trustees for the ALS Association.
He currently lives in North Carolina with his wife Shana, and two teenage sons.