Saturday
October 9, 2027
Redefining Familial ALS: The Patient Voice
Some patients live with a disease. Others live with the knowledge that it may be coming. In this conversation, Emily Cox speaks to what it means to carry a genetic mutation for ALS – watching, waiting, and choosing to act anyway. Emily’s story is a reminder that the patients we design trials for aren’t only the ones already diagnosed – they’re the ones planning a future around the risk.
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