Alpa Khushalani is a dedicated rare disease mom and patient advocate committed to breaking barriers in patient access and accelerating drug development. As Vice President of Customer Success & Delivery at Gooseberry Research, she leverages her firsthand experience with clinical trials to lead a team that designs and implements decentralized clinical trial services. Her work aims to improve patient participation and fast-track life-changing treatments.
Beyond her professional role, Alpa is a passionate leader in the rare disease community. As a board member of Parent Project Muscular Dystrophy (PPMD), she champions fundraising, advocacy, and care initiatives to empower affected families. She is also deeply engaged in policy efforts, serving on the DMD workgroup for Georgia’s Newborn Screening Advisory Council (NBSAC) to help shorten the diagnostic journey for rare disease patients. She has participated and testified at federal and state congress meetings advocating for funding rare disease research and care.
Alpa’s dedication extends globally—she actively supports a nonprofit school in Chennai, India, providing free education to over 250 underprivileged children from kindergarten through 12th grade.